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I am truly grateful to IndoUSRare and its founder, Harsha, for their unwavering support. Through their efforts, I received a an international travel scholarship that gave me the opportunity to attend the Global Genes Summit in San Diego, learn about rare diseases, latest research, and connect with patient advocates, researchers, and non-profits from across the world.
When I needed urgent help to get medicines from overseas for my son and required customs clearance, they stepped in again and guided me with empathy and efficiency.
Organisations like IndoUSRare work with such passion and compassion — always just a call away and ready to help. I deeply appreciate Harsha and the team for their dedication to the rare disease community.
Indo US Rare Organization is a commendable initiative dedicated to addressing the urgent challenges faced by the rare disease community. By fostering collaboration between India and the U.S., it builds a bridge for knowledge exchange, advocacy, and support. Having been part of most of the Indo US Rare Bridging Summits, I have seen firsthand how effectively they bring together all important stakeholders: patients, caregivers, clinicians, researchers, policymakers, and industry leaders from both countries. Their focus on awareness, education, and policy engagement highlights the critical need for timely diagnosis and treatment access, turning isolation into collective strength and hope for rare disease families.
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IndoUSrare is a wonderful non-profit organization dedicated to supporting individuals and families impacted by rare diseases. Their commitment to advocacy, awareness, and building a strong global community is truly admirable. They are making a meaningful difference by giving a voice to those who need it most. Grateful for the work they are doing and highly recommend supporting their mission.
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